We will be donating $100 from the proceeds of each wedding to EB research.
Beautiful Hallie Grace Davis was born to Anne and Joe Davis on June 5, 2021 at Memorial Hospital in Savannah Ga. She was diagnosed with JEB (Junctional Epidermolysis Bullosa) very shortly after her birth and was brought to several hospitals that specialize in treatment of EB. Sadly however, after only three months of a very difficult and courageous battle, Hallie Grace went to heaven and into the arms of Jesus.
Epidermolysis Bullosa (EB) is the most terrible disease you never heard of. It is a group of genetic skin diseases that cause the skin to blister and breakdown very easily. In children with EB, blisters form in response to minor injuries or friction, even holding or hugging an infant with EB is difficult since it can cause more blisters. Cases of EB are very rare (one out of every 20,000 births per year in the US) Wound care can help manage the condition and treat the sores but at this time there is no known cure. It most commonly affects children ages 5 and younger. Certain types are life threatening. Curing EB will open avenues to a cure for many rare diseases since it is caused by one genetic mutation. There is no treatment or cure at this time for JEB (the type of EB that Hallie Grace had).
We pray that you will join us in the battle for a cure. Donations toward EB research can be made at the EB Research Partnership – https://www.ebresearch.org